SuffolkRam Posted August 3 Share Posted August 3 I have been suffering from Atrial Fibrillation for just over ten years. It’s a condition where the heart beats fast upto 150 in medicated and irregularly. For most of that time I have had episodes of a few hours to a few months at various times. To help put it back in rhythm I have had 3 cardio ablations and 3 cardio versions. However it has been out again for about 6-7 weeks and I was told on Friday that the local cardiologists want to leave me in persistent afib but medicated to keep on top of the rate and also thin the blood to prevent clotting. Wondering if anybody else has persistent atrial fibrillation and can I ask how you are getting on? Alph, ariotofmyown and i-Ram 2 1 Link to comment Share on other sites More sharing options...
Mucker1884 Posted August 4 Share Posted August 4 No knowledge of it here, and therefore no advice/experience to pass on, but that doesn't mean I have to ignore your post. All the very best to you buddy, and hope all goes well. 🤞🍻 richinspain 1 Link to comment Share on other sites More sharing options...
Chester40 Posted August 4 Share Posted August 4 It's been difficult to avoid making a smutty joke about 'atrial fibrillation' sounding like something I've never tried but I'm willing to give anything a go once .... However, I'm better than that! Seriously, as far as I know, my heart is working fine!! Sounds like something very stressful to deal with though, so best of luck. SuffolkRam 1 Link to comment Share on other sites More sharing options...
Boycie Posted August 4 Share Posted August 4 I’ve had it for about 10 years too. I woke up one morning with an erratic heartbeat of about 180. Went to the A&E and eventually they gave me a tablet to correct it. The rest of the time it eventually rights itself, I’ve found drinking really cold water and an ice cold cloth on the back of the neck can correct an episode within about 10 mins. My ticker regularly does a series of double or multiple beats or pauses then thumps back into life, but other than being told to take aspirin every day to minimise the risk of a clot (I don’t) I’ve not been given any extra treatment. Link to comment Share on other sites More sharing options...
Ewetube Posted August 4 Share Posted August 4 I had it but never realised until I accidentally set myself on fire (misadventure, really silly, don't ask) and ended up in resus at Derby Royal. There the consultant told me I had afib. I eventually got taken in for an electrical cardioversion which successfully rebooted my heart. For the last 5 years I haven't had a problem. SuffolkRam 1 Link to comment Share on other sites More sharing options...
SuffolkRam Posted August 4 Author Share Posted August 4 8 hours ago, Boycie said: I’ve had it for about 10 years too. I woke up one morning with an erratic heartbeat of about 180. Went to the A&E and eventually they gave me a tablet to correct it. The rest of the time it eventually rights itself, I’ve found drinking really cold water and an ice cold cloth on the back of the neck can correct an episode within about 10 mins. My ticker regularly does a series of double or multiple beats or pauses then thumps back into life, but other than being told to take aspirin every day to minimise the risk of a clot (I don’t) I’ve not been given any extra treatment. Interesting to hear your story Boycie, it’s good that you have a handle on it. Will give the cold water a go, willing to try anything Link to comment Share on other sites More sharing options...
SuffolkRam Posted August 4 Author Share Posted August 4 5 hours ago, Ewetube said: I had it but never realised until I accidentally set myself on fire (misadventure, really silly, don't ask) and ended up in resus at Derby Royal. There the consultant told me I had afib. I eventually got taken in for an electrical cardioversion which successfully rebooted my heart. For the last 5 years I haven't had a problem. Great that it’s worked so well and held off Link to comment Share on other sites More sharing options...
KaiserBillsBatman Posted August 4 Share Posted August 4 (edited) I have it. I’ve been treated with drugs to mimimise it, then a minor ‘op’ to stop it, then different drugs to avoid it, but it came back and after discussion with my consultant I’ve come off meds and live with it. I can’t say I’ve even thought about it for months until I saw this post. Happy to answer any questions by pm if you want. One interesting side effect of one of the meds I was given (Amiodarone) is that if you take it and expose yourself to the sun your skin turns silver… Edited August 4 by KaiserBillsBatman Link to comment Share on other sites More sharing options...
SuffolkRam Posted August 5 Author Share Posted August 5 12 hours ago, KaiserBillsBatman said: I have it. I’ve been treated with drugs to mimimise it, then a minor ‘op’ to stop it, then different drugs to avoid it, but it came back and after discussion with my consultant I’ve come off meds and live with it. I can’t say I’ve even thought about it for months until I saw this post. Happy to answer any questions by pm if you want. One interesting side effect of one of the meds I was given (Amiodarone) is that if you take it and expose yourself to the sun your skin turns silver… Silver, must make a fortune from the peelings when you get sunburnt! So its permanent afib unmedicated, was there not a concern with clotting of the blood? Link to comment Share on other sites More sharing options...
Alph Posted August 5 Share Posted August 5 On 04/08/2024 at 11:26, Ewetube said: I had it but never realised until I accidentally set myself on fire (misadventure, really silly, don't ask) You can't just drop that in casually! That time I was on fire. Anyway... Mucker1884 and Ewetube 2 Link to comment Share on other sites More sharing options...
Ewetube Posted August 5 Share Posted August 5 1 hour ago, Alph said: You can't just drop that in casually! That time I was on fire. Anyway... Multitasking. Cleaning something with meths in one room, cooking a stew in the kitchen. As I approached the cooker I ignited. Comrade 86 1 Link to comment Share on other sites More sharing options...
Alph Posted August 5 Share Posted August 5 14 minutes ago, Ewetube said: Multitasking. Cleaning something with meths in one room, cooking a stew in the kitchen. As I approached the cooker I ignited. Jeez that's horrendous. Harsh to call yourself really silly! We all have those moments where our minds drift elsewhere and we autopilot. Most of us, most the time, get away with it. Hope you recovered or are recovering well and don't have to put up with too many knob heads drawing the story out of you! Comrade 86 and Ewetube 2 Link to comment Share on other sites More sharing options...
Mucker1884 Posted August 5 Share Posted August 5 3 hours ago, Ewetube said: Multitasking. Cleaning something with meths in one room, cooking a stew in the kitchen. As I approached the cooker I ignited. Thank you. Now I don't feel half as stupid for putting e-liquid in my eyes instead of soothing eye-drops... twice! 😲 *true dat... and yes, it did effin' sting! Ewetube 1 Link to comment Share on other sites More sharing options...
WilkoRam Posted August 5 Share Posted August 5 I had wolf Parkinson White syndrome - effectively an extra electric pathway in my heart that caused it to beat when it shouldn’t. Typically I ignored all the signs that I may have some sort of health issue, including passing out on a treadmill, coming off the back of it, hitting my head on a weights bench being sparko for a while. anyway it got picked up in a free health check at work. The company who did my health check rang me and said “we recommend you make an appointment with your GP as soon as you can but we cannot say why”. Made the appointment, my GP saw my ECG and said “I don’t understand, who said this was a week ago and yet you’re sat here” 😳 Had catheter ablation, where they go in and effectively kill the extra electric pathway (two failed operations and they got in the third time!!) and all is well now. I know it’s not the same but since we’re sharing. Crewton, SuffolkRam and Ewetube 3 Link to comment Share on other sites More sharing options...
KaiserBillsBatman Posted August 5 Share Posted August 5 11 hours ago, SuffolkRam said: Silver, must make a fortune from the peelings when you get sunburnt! So its permanent afib unmedicated, was there not a concern with clotting of the blood? Yes permanent since the cardioversion failed, I take a blood thinner (apixaban) to minimise the chance of clotting. I dont know what ‘normal’ feels like but my overall health has improved quite a bit as the health pros have tweaked my meds Link to comment Share on other sites More sharing options...
May Contain Nuts Posted August 13 Share Posted August 13 Dunno, probably not but I'm in A&E rather than at the game! Miggins, Mucker1884 and Comrade 86 1 2 Link to comment Share on other sites More sharing options...
Reggie Greenwood Posted August 13 Share Posted August 13 2 minutes ago, May Contain Nuts said: Dunno, probably not but I'm in A&E rather than at the game! Take care and get well soon May Contain Nuts and Miggins 1 1 Link to comment Share on other sites More sharing options...
May Contain Nuts Posted August 13 Share Posted August 13 (edited) 10 minutes ago, Reggie Greenwood said: Take care and get well soon Cheers Reggie. All I wanted was an asthma test because I've been short of breath and they sent me here! ECG normal. Bloods done and x-ray to come just to rule anything major out, hopefully. I'll be here a few more hours yet. Edited August 13 by May Contain Nuts i-Ram 1 Link to comment Share on other sites More sharing options...
Reggie Greenwood Posted August 13 Share Posted August 13 1 minute ago, May Contain Nuts said: Cheers Reggie. All I wanted was an asthma test because I've been short of breath and they sent me here! ECG normal. Bloods done and x-ray to come just to rule anything major out, hopefully. I have to go to old DRI on Monday to get an ECG monitor fitted to wear for a couple of days. Testing for something called Long Q syndrome. Slow return heat beat I think. Sounds like you will get the all clear 👍🏼 May Contain Nuts 1 Link to comment Share on other sites More sharing options...
May Contain Nuts Posted August 13 Share Posted August 13 1 minute ago, Reggie Greenwood said: I have to go to old DRI on Monday to get an ECG monitor fitted to wear for a couple of days. Testing for something called Long Q syndrome. Slow return heat beat I think. Sounds like you will get the all clear 👍🏼 Similarly I hope things go well for you and there's a non-complicated fix Reggie Greenwood 1 Link to comment Share on other sites More sharing options...
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