Coneheadjohn Posted November 3, 2018 Author Share Posted November 3, 2018 2 minutes ago, Angry Ram said: Did you really get banned? Hahaha,of course not mate. Poor Yorkshire sarcasm. Link to comment Share on other sites More sharing options...
Mrs Cone Posted November 3, 2018 Share Posted November 3, 2018 12 hours ago, Chester40 said: Brilliant news. Great end to a terrible week... back home and get 3 points in the bag..every little helps. Can I ask why when he is obviously so closer monitored and been seen recently has the abscess been able to go unchecked? Is it just fast paced, or did they know something was wrong but hoped it would go away etc? I bet you are all experts on his condition as you bounce from one expert to another! Your child getting sick is your worse fear, and as always your bravery puts me to shame. Have a great weekend. What a rollercoaster for you, nice quiet few days in order for you. Thanks for your kind words mate. They were also very reluctant to operate on his right side again as he is 100% deaf on his left and this is not repairable, So they have been trying to preserve what little hearing he has on the right as any surgery/problems on that side could leave him profoundly deaf. Link to comment Share on other sites More sharing options...
RoyMac5 Posted November 4, 2018 Share Posted November 4, 2018 If only Van Gogh had known about your surgeon! #COYR Link to comment Share on other sites More sharing options...
GboroRam Posted November 4, 2018 Share Posted November 4, 2018 50 minutes ago, RoyMac5 said: If only Van Gogh had known about your surgeon! #COYR It does look like a new fashion - interchangeable ears, just pop one off and slip a new style one on. Joel could be on to a big moneyspinner with this, if he plays it right. Link to comment Share on other sites More sharing options...
Van der MoodHoover Posted November 5, 2018 Share Posted November 5, 2018 10 hours ago, GboroRam said: It does look like a new fashion - interchangeable ears, just pop one off and slip a new style one on. Joel could be on to a big moneyspinner with this, if he plays it right. Mum and dad Cone could buy a pair of Gary Rowett sticky out ones as a wind up or for when Joel has been out of line ? only joking Cones and not trying to trivialise what’s been a difficult week - but it’s great to see that it looks as though things are mending well. Link to comment Share on other sites More sharing options...
Mrs Cone Posted November 6, 2018 Share Posted November 6, 2018 On 05/11/2018 at 07:36, HantsRam said: Mum and dad Cone could buy a pair of Gary Rowett sticky out ones as a wind up or for when Joel has been out of line ? only joking Cones and not trying to trivialise what’s been a difficult week - but it’s great to see that it looks as though things are mending well. Lol You have to laugh and joke about things to stop yourself and the rest of them getting down mate. Last week before his op the swelling on the right side of his head and face was huge, his face was distorted and his ear was an inch n half lower than the other. Still didn't stop me shouting "HEY YOU GUYS!" every opportunity I got as he looked like Sloth out of the Goonies!!? He takes it well, he's still got a great sense of humour and attitude xx Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 6, 2018 Author Share Posted November 6, 2018 On 04/11/2018 at 12:56, i-Ram said: Any surgeon worth his salt would have insisted on that bum fluff being removed pre-op. Delighted that another battle has been won, and let’s hope much better times now lie ahead for the Cones. I’ve told him I’ll get him one if he’s going to use it. Link to comment Share on other sites More sharing options...
jono Posted November 6, 2018 Share Posted November 6, 2018 I never know what to say when you here of epic struggles. Just want to send good wishes and get well soon. COYJ Link to comment Share on other sites More sharing options...
Van der MoodHoover Posted November 6, 2018 Share Posted November 6, 2018 6 hours ago, Mrs Cone said: Lol You have to laugh and joke about things to stop yourself and the rest of them getting down mate. Last week before his op the swelling on the right side of his head and face was huge, his face was distorted and his ear was an inch n half lower than the other. Still didn't stop me shouting "HEY YOU GUYS!" every opportunity I got as he looked like Sloth out of the Goonies!!? He takes it well, he's still got a great sense of humour and attitude xx Brilliant! Made me proper laugh out loud and now the city commuters are scrambling to get as far away from me as possible. keep the updates coming - really uplifting. love, Hants x Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 16, 2018 Author Share Posted November 16, 2018 We went back in Tuesday as planned,Prof Ray is happy enough with how Joel is looking. We will know more in 2 weeks when they unpack his ear. Prof Ray’s words were nearly a disaster. Anyway,they are sending Joel to immunology for some tests as they think something else might be going on. That’s it really,I’m really worried about him at the minute,just doesn’t seem right to me,he wouldn’t speculate on the immunology referral. Joel is not good in himself and moaning constantly about not being allowed to come to a match,unfortunately I can’t stretch to corporate every week. @Paul71 have you any experience/advice on immunology? Link to comment Share on other sites More sharing options...
McRamFan Posted November 16, 2018 Share Posted November 16, 2018 17 minutes ago, coneheadjohn said: immunology for some tests Its a blood test that specifically looks at the immune system of Joel's. It is a very large, diverse and important branch of medicine. This link is detailed, and if you are prone to self diagosing. probably best avoided. https://www.immunology.org/public-information/what-is-immunology Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 16, 2018 Author Share Posted November 16, 2018 16 minutes ago, McRamFan said: Its a blood test that specifically looks at the immune system of Joel's. It is a very large, diverse and important branch of medicine. This link is detailed, and if you are prone to self diagosing. probably best avoided. https://www.immunology.org/public-information/what-is-immunology I know it wasn’t good because Prof Ray wouldn’t look at me but we have to take it as positive that they’re trying to do something. Cheers for the link. Link to comment Share on other sites More sharing options...
Sith Happens Posted November 16, 2018 Share Posted November 16, 2018 4 hours ago, coneheadjohn said: We went back in Tuesday as planned,Prof Ray is happy enough with how Joel is looking. We will know more in 2 weeks when they unpack his ear. Prof Ray’s words were nearly a disaster. Anyway,they are sending Joel to immunology for some tests as they think something else might be going on. That’s it really,I’m really worried about him at the minute,just doesn’t seem right to me,he wouldn’t speculate on the immunology referral. Joel is not good in himself and moaning constantly about not being allowed to come to a match,unfortunately I can’t stretch to corporate every week. @Paul71 have you any experience/advice on immunology? Its hard to say. I would expect Joel gets blood tests all the time (i think?). If he does maybe something has suggested a compromised immune system but then i wouldn't expect anything different with everything he has to contend with. I know some about blood counts etc so post them if you know them. The good thing is the experts are looking after him. My advice for helping with immune system? The recommended dose of vitamin c daily is 50 mg. You can and should take a lot more, ascorbic acid (powdered vit c) take several thousand mg a day in batches. I lost motivation to do it in my old job and suffering more with my mental health issues, since i started my new job i take several thousands a day and haven't had a day off work in over 6 month's. Be careful build it up though as can give you runs. Hope all goes OK Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 17, 2018 Author Share Posted November 17, 2018 11 hours ago, Paul71 said: Its hard to say. I would expect Joel gets blood tests all the time (i think?). If he does maybe something has suggested a compromised immune system but then i wouldn't expect anything different with everything he has to contend with. I know some about blood counts etc so post them if you know them. The good thing is the experts are looking after him. My advice for helping with immune system? The recommended dose of vitamin c daily is 50 mg. You can and should take a lot more, ascorbic acid (powdered vit c) take several thousand mg a day in batches. I lost motivation to do it in my old job and suffering more with my mental health issues, since i started my new job i take several thousands a day and haven't had a day off work in over 6 month's. Be careful build it up though as can give you runs. Hope all goes OK Tested all the time,cheers for the advice. The runs wouldn’t be good for Joel...I don’t think he’d make it. Google doesn’t come up with any pleasant suggestions for ear disease/infections and immune defects. Link to comment Share on other sites More sharing options...
McRamFan Posted November 17, 2018 Share Posted November 17, 2018 @coneheadjohn https://www.drweil.com/vitamins-supplements-herbs/vitamins/overloading-on-vitamin-c/ Good article, might help. Link to comment Share on other sites More sharing options...
Sith Happens Posted November 17, 2018 Share Posted November 17, 2018 3 hours ago, coneheadjohn said: Tested all the time,cheers for the advice. The runs wouldn’t be good for Joel...I don’t think he’d make it. Google doesn’t come up with any pleasant suggestions for ear disease/infections and immune defects. Yeah the runs isn't good as i found out to my own cost. Would also say speak to your consultant before doing anything which i know you would anyway. Link to comment Share on other sites More sharing options...
Sith Happens Posted November 17, 2018 Share Posted November 17, 2018 1 hour ago, McRamFan said: @coneheadjohn https://www.drweil.com/vitamins-supplements-herbs/vitamins/overloading-on-vitamin-c/ Good article, might help. I think we all have to find what suits us. What works for one won't for another. In the research i did i found similar that if you are healthy there is no point in taking high dose, but that there can be (but unproven) a benefit for cancer sufferers etc. I know it works for me. It also helps my platelet count which can be low sometimes. Taking high dose definitely works in maintaining a decent level for me. Its also a great antioxidant which helps with my liver as i often have elevated counts. Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 17, 2018 Author Share Posted November 17, 2018 1 hour ago, Paul71 said: I think we all have to find what suits us. What works for one won't for another. In the research i did i found similar that if you are healthy there is no point in taking high dose, but that there can be (but unproven) a benefit for cancer sufferers etc. I know it works for me. It also helps my platelet count which can be low sometimes. Taking high dose definitely works in maintaining a decent level for me. Its also a great antioxidant which helps with my liver as i often have elevated counts. I’m going to try him on something equivalent to Berrocca but he’s had that before,see how we go. Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 26, 2018 Author Share Posted November 26, 2018 Something’s gone wrong,hopefully nothing major. Just waiting the call back as to where we’re going. Lots of blood and pain right side...I’ll come back to you...crap. Link to comment Share on other sites More sharing options...
Coneheadjohn Posted November 26, 2018 Author Share Posted November 26, 2018 I1 head and neck ward,I’m going to be in the chapel again...give him a break please Link to comment Share on other sites More sharing options...
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